I have fibromyalgia. Fibromyalgia, now thought to be a nervous system disorder, causes pain, muscle stiffness, sleep disorders, and fatigue. Other symptoms include irritable bowel, irritable bladder; in fact it has been referred to as the “irritable everything” syndrome. Treatment options include medication and supplements, massage therapy, chiropractic treatments, physiotherapy and biofeedback. If you or someone you know has fibromyalgia, you may appreciate the following resources:
Information sheet from the American College of Rheumatology: http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/fibromyalgia.asp
Diagnostic criteria: http://www.fmnetnews.com/fibro-basics/diagnosis – this website also references the new diagnostic criteria the American College of Rheumatology developed in 2010.
http://www.fmscommunity.org/ - Offering caring, sharing and understanding.
www.nfra.net (National Fibromyalgia Research Association)
http://www.cfidsselfhelp.org/ from the website: “Offering groups and resources for improving your quality of life as a person with Chronic Fatigue Syndrome or fibromyalgia.” Includes on line courses, products and tips for managing ME/FM.
Know Fibro – with Martha Beck – life coach, author, and fibromyalgia sufferer: http://knowfibro.com/index.jsp
For the latest research on fibromyalgia, visit www.prohealth.com/fibromyalgia/ Supplement purchases, available on their website, fund research.
If you’re a ‘babe’ with fibromyalgia, or other chronic illnesses, check this out: http://www.ChronicBabe.com
Canadian Institute for the Relief of Pain and Disability http://www.cirpd.org/Pages/Default.aspx
Canadian Pain Society: http://www.canadianpainsociety.ca/en/
Patients with fibromyalgia, and other chronic illnesses, become experts in their own right. A significant number of them blog about their experiences. Some are listed on my page “link love” under the category “Chronic Illness Blogs.”